Welcome to the SMR fund for terminally ill children
This fund was set up by Karen and Ben Marshall-Rogers in loving memory of our little boy Seth, who passed away on the 16th june 2008. Seth was just 9 months old and died from a very rare condition known as ARX. We have set up a fund to raise money to help other children, and their parents, who have ARX and for Oxford childrens ward were Seth was so well looked after. Please feel free to take a look around our site and learn more about Seth and and what we are trying to achieve in his name to help other famalies that are in need of support.
Fundraising Update!!
The link below will take you to Ben's Just giving web page. He is doing a parachute jump later in the year to raise money for The Pepper Foundation, part of the Iain Rennie hospice at home care. They are the nurses that helped us care for Seth when we brought him home to spend the last few weeks of his life. Without there support we would have had to take him back into hospital.
http://www.justgiving.com/Ben-Marshall-Rogers/
SENDING BALLOONS FOR SETH
16.6.2009
As promised here is a picture of Karen, Ben and Bailey handing over the cheque and new equipment, for the nurses and
play specialists from robins ward at oxford, where Seth was loved and so
well looked after.
Thankyou again so much for all your kind donations and support.
Please take a look at Seth's Gonetoosoon page@
http://seth-marshall-rogers.gonetoosoon.org/
or his one true media page
also take a look at Seth's balloon release monatge at:http://www.onetruemedia.com/otm_site/view_shared?p=640fdbea2e594c54ab0fe4&skin_id=601&utm_source=otm&utm